The Open Patient: Advocating for open access to medical data
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Steven Keating had always been interested in data and learning about things, which is why he volunteered to do a research scan when he was a student. The scan revealed an abnormality. In 2014, the abnormality had grown into a massive tumor. Soon he learned that there were many barriers keeping him from accessing his own data. "And that's what I've been sharing, which is this question: How come as a patient we're last in line for our own data? How come my doctors and my university researchers can see my tumor genome and I can't?"
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